From the “Tears Together” newsletter: Tips for the Holidays

The holiday season can be a rough time for those who are
grieving. It seems like the rest of the world has gone on without
you, and everyone else is happy and joyful. In our American
society, the holidays are a time of celebration. They help us celebrate our religious beliefs and give meaning to the change of seasons. Bereaved people often express that theyfeel out of step with the rest of society at this time. The image of “happy” people bustling around shopping, cooking, and entertaining can intensify the bereaved person’s feelings of isolation and grief. There are thoughts of “how can the world be going on as if nothing happened?” Friends and family may send a message that you should be better by now, you should be getting over the loss of your baby. Or they may seem to have forgotten your loss completely.what you are grieving, and it is a very real loss.

Remember that those who have lost spouses, parents, etc., have many memories of their loved one that they can share with others. Those whose babies have died are mourning the loss of memories they were planning to make. For example, you may be thinking about how cute he would look in the elf pajamas, or how this is the year she would have been old enough to talk to Santa, or, if you would have still been pregnant, how you would have been the center of much excitement, anticipation, etc. Others may not understand that this is

Some parents feel guilty when they do find themselves smiling or laughing. Give yourself permission to feel joy—it is not a betrayal of your baby. It is an early sign that you will learn how to live fully again.

 Some local parents who have survived the holidays without their babies have shared some suggestions for caring for yourselves and honoring your babies during this time.

  • Do what feels right to you . . . . If it feels right to do your traditional celebration, do it. If it doesn’t feel right, change it (maybe only for this year, but do what’s right for you).
  • Take care of yourself. Be kind to yourself. Do whatever nurtures you—take a walk or a bubble bath, meditate, pray, listen to music 
  • Know that it is ok to “skip” the holidays this year. You may decide to take a trip instead.
  •  Give yourself permission to decline any events or obligations without guilt.
  • Make or buy an ornament for your baby. If you have other children, this is a great project to do with them.
  • Give ornaments to other family members to acknowledge the baby.
  • Make a donation to “Toys for Tots” or another charity in memory of your baby.
  • Light a candle each evening for an hour to remember your baby.
  • If you decide to send out holiday cards, add a small star stamp, or another symbol, to the signature to acknowledge your baby. Some will know what it means, others will not.
  • Reach out to others—volunteering helps you escape your own pain by helping to ease the pain of others.
  • Plan something special for after the holidays. Have something, big or little, to look forward to in January.

 

 
  Please add your own comments here and share your suggestions for getting through the holidays after you have lost a baby.

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Annual Walk to Remember coming up

Everyone is invited to our next upcoming event here at NCH.  Our annual Walk to Remember will be held on Sunday, October 3, 2010 at 2 pm, beginning in the hospital auditorium.  This is to remember all babies lost to miscarriage, ectopic pregnancy, stillbirth, and newborn death.  We will begin with a program in the auditorium, walk together around the hospital grounds, and end with a balloon release in the RTS Memorial Garden.  Refreshments will be served in the Village Cafe.

Bereaved parents, children, family members, and friends are welcome.

To have your Baby’s Name listed in the memorial program, or for more information, please email Pam at pferguson@nch.org.

Hope to see you there!

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The Butterfly Release

              
 
 

 Saturday, May 15, 2010 came without all the rain of the previous few days.  Butterflies don’t like rain, but they didn’t seem to mind the slightly cool temperature and soft breeze in the RTS garden.  Our sixth annual Butterfly Release began with a short program by our Chaplain, Janet Frystak.  She shared some thoughts about the symbolism of butterflies, and a couple of special readings.  We dedicated three new memorial stones that were recently donated and placed in the garden, and thanked the donors for supporting the RTS garden.  The three were:  the Jordan family, in memory of Daniel Jordan; Sonia Cannon, in memory of her grandson; and the Bloem family, in memory of Willis Daniel Farmer.  Then we blessed the basket of butterflies, and proceeded to the garden.  Each family received their own individual butterfly to release.  Most of the butterflies stayed close and were able to be observed for a long time, some landing on flowers, others on children’s hands.  It was a lovely sight.

Afterwards, we all enjoyed refreshments and some time to relax.  The children were invited to decorate butterfly cookies to take home. Thank you to all of you who were able to come.  We had our largest group yet, over 100 people.  For those who couldn’t make it, know we were thinking of you. Some of you were able to visit with your nurse, as several staff members were there on their day off to help with the event and to show you that your babies are special to us, too.  We don’t forget either!  So a big “thank you!” to Kathleen, JoAnne, Peg (phenomenal purple cookies as always), Hope, Sue, and Sue’s daughter Grace.  I couldn’t do it without all of them.

I hope the day was as much a blessing to all of you as it was to me, and that you feel peace throughout  the summer whenever you see a butterfly.

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From the “Tears Together” Newsletter: My Story by Beth Attanaseo

Monday October 27, 2008 was a typical fall day. The leaves had mostly fallen, the sky was grey and cloudy.  But what started out as a normal day would end very differently.   I was about 8 or 9 weeks pregnant with my 3rd and feeling great, until that day.  I had started bleeding and my husband drove me and our 2 daughters to my OB office.  It was there that I found out I probably had an ectopic pregnancy.   My husband and daughters were with me in the exam room.  I tried very hard not to be sad or cry –  I didn’t want to scare the kids.  My doctor wanted me to immediately have laparoscopic surgery and a D&C.  I just felt numb.

I will never forget being wheeled down to surgery by myself, since my husband had to be with our other kids.  The nurse who was with me during the pre-op was so kind and sweet.  He took my hand and told me that they would probably find “remains” and asked if I wanted them blessed.  I will never forget that word, “remains”.  Until then I had just thought of it as a bunch of cells, not a “real” person yet.   I think that’s when it really hit me, I lost a baby!  I lost that new pregnancy ornament I wanted to get for our Christmas tree.  I lost a person at our dinner table.  I lost the hopes and dreams for this child…would it be a boy after two girls?  Would it have my blue eyes or my husband’s brown eyes?  I would never know.  But the hardest was that my girls lost their baby brother or sister.  How would I tell them?  How would they react?

The days after the surgery were a blur.  I cried some, slept a lot.  I was sore and in physical pain, and the pain was a constant reminder of what had happened.  Each day got a little easier, a little less “sore” than the day before.  My oldest daughter, who was 4, asked a lot of questions.  We told her the truth, that the baby had died. 

 I also had the daunting task of telling my friends and family what had happened.  I didn’t mind, most people were very kind and expressed their deepest sympathies, but there were some who did not understand, they couldn’t comprehend why I was sad, why I was mourning, some even told me to “get over it”.  Many thought, it was so early, you aren’t attached yet.  I hope for their sake that they never have to understand.  I also will never forget looking over at my husband one night, probably a month after the surgery, and his face was red, his eyes were watery.  I asked him what was wrong, and he just said that he was sad about the baby.  Until then I had felt it was my loss; I had forgotten that he lost a baby too.  He had been so busy taking care of me that he hadn’t mourned yet.  We hugged and cried together.  Knowing that he hurt too began the healing process.  It also really helped me to talk to others who knew how I felt and who understood that I needed to mourn.  I also like to be a listening ear to moms who are going through the pain of losing a baby, letting them know they are not alone and that their feelings are normal.

It has been almost a year and a half since I lost that baby.  I have since had a baby girl who I love very much!  I still often wonder about my baby in Heaven.  I still get sad, especially on the due date or on that October day when my life was changed, and even today as I write this.  The pain lessens, and things change, but he/she is a part of our lives, a part of our family and that part will never change.

As Mother’s Day approaches, I think about my family and how my role as a mother is ever changing.  We don’t have any special traditions we do every year; the kids usually make cards and breakfast for me.  When I was pregnant with my first, my husband gave me a simple necklace, my very first Mother’s Day gift.  When a new child is born he gives me the birth stone on Mother’s Day.  Last year he gave me one for our Angel baby; it was the June birth stone since he/she was due in June.   I like knowing that all my children are always with me; it reminds me that no matter how long someone is with us, they are forever in our hearts!

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Butterfly Release coming!

Northwest Community Hospital in Arlington Heights is hosting our annual Spring Tea and Butterfly Release on Saturday, May 15, 2010 at 11:00 here at the hospital. This is an event to honor all of you Mothers and Fathers and to remember your precious babies. Whether your loss occurred at NCH or not, all are welcome to attend, along with your family and friends. Please email me at pferguson@nch.org for more information and/or to rsvp and reserve your butterfly!

Sisters with their butterflies at the 2009 Butterfly Release

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TYPES OF PREGNANCY LOSSES

 There are several types of pregnancy loss.  Here are the definitions of some of the words you may hear.  Where there is attachment and love and then a death, grief will be experienced.  Grief is experienced in relation to the significance of the attachment, and is affected by many things.

Miscarriage – any pregnancy loss before 20 weeks of gestation, with no signs of life.  Usual estimates are that 15-20 percent of pregnancies end in miscarriage, 80 percent of these losses occurring in the first trimester.  Actual number of losses is probably higher, since many miscarriages occur before the woman knows she is pregnant.  Some causes of miscarriage that have been identified are genetic or chromosomal abnormalities (about 50-60 percent of miscarriages), hormonal factors (particularly low progesterone), uterine factors (for example, incompetent cervix), infections.  There is rarely anything the parents could have done to prevent the loss.  The diagnosis may be made on a routine visit to the doctor, when no fetal heart beat is detected, or the mom may have heavy bleeding and cramping that causes her to seek medical care.  Surgery may be needed to ensure that all the tissue is removed from the uterus.  The sense of loss varies greatly.  One study (Limbo and Wheeler, 1986) found that 75 percent of women who had a miscarriage felt that they had lost a baby and 25 percent felt it was not significant and it was just another life experience.

Ectopic Pregnancy – the implantation of the fertilized ovum outside of the uterus, most commonly in the fallopian tube.  Estimated to occur in almost 20 of every 1000 pregnancies. 

The major risk factors include having a prior ectopic pregnancy, or having a previous infection or surgery on the fallopian tube. The treatment may be medical or surgical, depending on the patient’s status.  Ectopic pregnancy can be a life threatening event which also has far reaching effects on future fertility, which certainly affects the grief experienced with this type of loss.

 Stillbirth – fetal death after 20 weeks of gestation.  This means that the baby died before birth, no matter how long or short the time is between the death and the birth.  Estimates range from 5-9 per 1000 live births.  Even when a comprehensive evaluation is done, a cause can be found in only about 40 percent of cases.  When a cause can be found, approximately ¾ of the time it is related to problems with development of the baby, and about ¼ of the time with problems with the placenta or umbilical cord.  As with miscarriage, there is almost never anything parents could have done to prevent it.

 Newborn (or Neonatal) Death –the death of a newborn within the first 28 days of life.  Occurs in approximately 4-5 of every 1000 live births.  The two most common causes in the US are congenital malformations or chromosomal abnormalities, and low birth weight or prematurity.

Whichever type of pregnancy loss you have experienced, if you would like to receive additional support, please call the RTS office at 847-618-5220.  You are also very welcome to join us at the parent support group.

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From the “Tears Together” newsletter – Children and Pregnancy Loss

Maybe you already had one or more children when you experienced the loss of your baby.  Or maybe there are other children in your family you are close to, nieces and nephews, etc.  It can be hard to decide if you should talk to the children about the baby.  Especially if it was a very early loss or the children are young, it can be tempting to say nothing at all.  Yet, if you are grieving, the children will almost certainly sense it and will wonder why you are sad and why the atmosphere in the home has changed.  Kids are amazingly perceptive in this way!  The problem is, when they sense something has changed but they are not given any explanation, they become frightened and confused.  Many of them will blame themselves, thinking, for example, “Mommy must be sad because I broke that toy yesterday.” 

    How can you talk to children about death?  Keep it simple, but keep it honest.  If you know the reason, give a brief explanation.  “The baby’s body stopped growing and he died” is much better than “we lost the baby” or “the baby went to sleep”.  Children will take these phrases very literally and will expect you to go find the lost baby, or may become afraid to go to sleep.  If they have no previous experience with death (a pet or grandparent’s death, for example) they may need a simple explanation of death.  Explain that the body stops working and cannot hear, see, think, taste or feel anything.  It is forever.  It is very different from sleeping.

    How do children grieve, and how can you help?  Many children have very ambivalent feelings about the pregnancy – they are not sure they want to share Mom and Dad with this new baby, or share their room, toys, etc.  In their way of thinking, when the baby dies “it must be because I was wishing there wouldn’t be a baby, and now there isn’t.”   Because they will be afraid to tell you this, 

it is important for you to tell them the baby died because his body stopped working, not because of anything anyone did or thought.  Let them know you are sad and it will take some time to feel better.  Talking about your own sadness honestly will let the children talk about their own feelings.  Don’t be surprised to see them go back to playing pretty quickly – they are not able to grieve for long periods and need breaks from it.  Also, play is the way many children work through different situations.  You can learn what they are thinking by listening to their play.  Older children may like to draw a picture or write a poem for the baby.

    As the children grow up, they may bring up the subject of the baby occasionally.  They may ask the same questions you thought you had answered.  It just means that they are growing in their experience and understanding.  Keeping the lines of communication open and being willing to talk about the baby will help hold the baby’s place in your family’s story.

Some recommended reading:

A Child’s View of Grief by Alan Wolfelt, Ph.D.

Books to share with children:

Ethan’s Butterflies by Christine Jonas-Simpson

Something Happened by Cathy Blanford

We Were Gonna Have a Baby, But We Had an Angel Instead by Pat Schwiebert

No New Baby by Marilyn Gryte

(Find these on amazon.com or through Centering Corporation www.centering.org)

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Valentine’s Day ~ Couples Supporting Each Other

Valentine’s Day is coming around again – how are you doing in your relationship with your spouse or partner?  Grieving the loss of a baby can put a strain on the strongest relationships.  Men and women grieve differently, and you are 2 different people, with different experiences in life before this event that will affect how you respond.  The experts (other bereaved parents) have some tips for you.  Make your relationship a priority (I’ve heard moms say, “I already lost the baby, I didn’t want to lose my partner, too”).  Give each other permission to grieve differently.  Communicate with each other, but also find outside people to talk to – when you are both in pain, sometimes it’s best to get your support from someone besides your partner.  Have a daily “2-minute hug”.  Find time to have a get-away for just the two of you.  Continue dating even now.

I’d like to hear your concerns and suggestions about strengthening your partner relationships.

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From the “Tears Together” newsletter: Remembering ~~ Anniversary Dates

Fall cleaning?  It’s not spring and yet over the last few weeks I have found myself in a complete cleaning frenzy.  Those who know me well realize that this behavior typically means something is eating at me.  Life hasn’t been unusually busy or more stressful lately so I couldn’t put my finger on it.  Frankly, I began to think it was a result of the stress of raising three boys (ages 11, 9 and 5), working full time and having little downtime for myself.  Cleaning is my outlet-my way of keeping order and control.  But this time, the frenzy wasn’t about order and control, it was about avoidance. 

Adam’s 7th birthday is approaching and this time of year continues to be difficult.  He was born at 20 weeks after being diagnosed with a fatal birth defect.  It amazes me how my body seems to remember before I consciously think about it. My whole mood begins to change and my heart starts aching as the weather changes, the darkness falls, and the calendar flips. I remember learning of the news, preparing for his birth, feeling his movement for the last time, his funeral and every little detail with the intensity as if it were yesterday.  But as much as it aches, I am equally grateful my little angel came into my life. His existence taught me so much about myself, my family, friends and he brought out the kindness in so many. I am also grateful for all those he brought into my life, including my youngest son.

Without Adam, I wouldn’t be who I am today and that is the very reason I am learning to embrace these heightened feelings rather than fight them. So as my eyes start to tear as I write this, I keep in mind that it’s just part of my remembering-the sadness, pain, and ultimate joy he brought to my life.

~ Jennifer Schols

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The 2009 Holiday Candle Lighting Service

                      

January 13, 2010: another first for me – I have discovered how to post a photo to this blog!  And aren’t these lovely photos?  I extend my warmest thanks to Nick and Michelle for sharing these images from the December Candle Lighting Service.

On Monday, December 14, the Northwest Suburban Pregnancy and Infant Loss Support Group, sponsored by Northwest Community Hospital and the Alexian Healthcare System, hosted our annual candle lighting service in the chapel at Alexian Brothers Hospital.  A large group of family and friends gathered to take a few moments to sit quietly and remember their special babies.  Music, prayers, and reflections were included.  Each family had written their baby’s name on their own frosted-glass votive, and as they were lit, they were placed on the altar.  The beauty of all the candles glowing softly together was very moving.  After the ceremony concluded, all were welcomed to take their own candle home.  First, though, someone took a photo very quietly of the candles, and soon photos were being taken spontaneously with cameras and cellphones – something that hasn’t happened before.  I think the candle light was just especially lovely this year.  If you weren’t able to attend, don’t worry.  All babies were remembered during the service.

Thank you to Alexian Brothers for hosting this special event.

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